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Sickle Cell, Why is this A Silent Disease among other diseases...

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92 Comments to Sickle Cell, Why is this A Silent Disease among other diseases... :

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karen w white on Monday, October 4, 2010 4:30 PM
I believe it is silent because advertiser will not push a disease that they believe only affects blacks... It is really sad they don't know it affects everybody.... My choice of the three is r3
Reply to comment
 
ayoola olajide on Friday, October 8, 2010 10:38 AM
For more news stories, articles, help resources, read the world's first dedicated sickle cell newsmagazine.


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Sickle cell anemia on Friday, June 20, 2014 6:41 AM
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Madison E. Row on Monday, October 4, 2010 4:37 PM
Great website I must share... need more music on jazz... anyway... I agree... everything in our society that is heard must be supported by ads... This is cancer month... you have the whole world supporting cancer and don't get me wrong because I am a cancer survival as well but our society is selfish when it comes to helping our black people in america... this disease is global... aids has more preference over sickle cell... It will continue to be Silent until we all pull together and get the Gates family to market Sickle Cell Anemia since they are giving away billions of dollars. Sickle Cell Foundation call on the Bill Gates family to get heard... They don't have the even leave the country to help in the U.S.A.
Reply to comment


Freedom Rings on Monday, October 4, 2010 4:45 PM
I normally do not write on blogs... but I have sickle cell anemia and I just want to thank your company for recognizing Sickle Cell Anemia. I am suffering and in so much pain and it saddens me that it is a Silent Disease. Our voices are never heard and who really hears our cries... I would cry for hours and the nurses just shut my door. I would love to go on Larry King Live and Speak on Sickle Cell... or on 60 Minutes because we make a difference in this world Let's Break the Silence!!! Wouldn't it be nice to see "Sickle Cell the Un-Silent Disease"...
Reply to comment


Rico Ray Collins on Monday, October 4, 2010 5:01 PM
Man, I love your site. I am 17 years old and I spend most of my days in the hospital my mom crying my dad pacing the floors. When I am up an able I surf the web. I found your site the other day. It is good seeing a radio station talk about or even considering Sickle Cell a topic... I thought Only my peeps and doctors were the only ones knew about this what I call blood disorder. I would say that I am crying to see this but that would make me be a little boy... I am a young teen and on my spare time I watch basketball and hope to get out the children's hospital... I lost my limbs because it was in my bone marrow... All I wanted to do was to play bal... So I play madden bal... For the real playas you never kno just how bless you are don't take it for granted life is to short and I support ya 100%... and by the way Thanks for thinking of Sickle Cell it made my day... Rico Ray
Reply to comment


pOp Squally on Monday, October 4, 2010 5:42 PM
Hey Rico Ray hang in there man... and you will be out the hospital soon... I love Madden Ball as well and my jump shot is like DJ ok it sucks... Have much love for our BlogTown Upside Down viewers and writers... Keep letting us know how we are doing and what you want us to share from the r2 Family. We are actively involved in the communities and will be supporting Golden Heart Foundation this Oct 15, 2010 at Westwood Community College an Aviation Awareness Day with Inner City Students. his is what makes Radio 2000 Network.net different. Hearing from people like Rico Ray. Real life stories. Keep in those books young teen and prepare yourself for college. You are right you are not a little boy. Sometimes it is still good to cry. I cry when I look at my paycheck... Just kidding... love you Boss... on the real... Make your parents proud cause momma and daddy is by your side... Freedom Rings may be right to get Sickle Cell heard on Larry King Live and 60 Minutes... I challenge the Sickle Cell Foundation to stand for the Sickle Cell patients and get there voices heard on Larry King Live and 60 Minutes. This is serious!!! Don't Stop until the Silence is Un-Silent... I like this... Let others know about the World Famous Internet Radio Broadcast Site the Home Choice of Listening right at your fingertips. I said it because I believe that... That wasn't a joke. My peep trying to tell me what to write... You, better go get your own blog... I'm callin you out girl... Keep it posted right here www.radio2000network.net cause we care about You.
Reply to comment


Rico Ray Collins on Monday, October 4, 2010 5:44 PM
Thanks pOp Squally weird name but coo...
Reply to comment


Ronald on Monday, October 4, 2010 5:46 PM
I don't believe none of those beautiful ladies have Sickle Cell Anemia... Are they married.
Reply to comment


karen w white on Monday, October 4, 2010 5:48 PM
Mr. pop squally I like your comment the sickle cell foundation needs to push for the patients and get heard on Oprah...
Reply to comment


Sheila Woods on Monday, October 4, 2010 5:57 PM
Hey, everybody... I was visiting the site just got home to view the home choice of listening got to get more gospel songs I love the new look you know I am going to tell ya... it is good hearing pOp Squally P.S. I love your comments like always... I don't believe those beautiful ladies have Sickle Cell the are too cute lady divas.... Also my comment is like most no advertising dollars supporting Sickle Cell.
Reply to comment


Jayla Hendeson on Monday, October 4, 2010 9:03 PM
Thanks for bloggin P.S. miss you. This is a very interesting question and glad you asked. It is silent because we don't address these issues to the public and educate them of Sickle Cell. I only here it encircled in the black communities instead of the whole communities. The Sickle Cell Foundation need to put funds together and advertise on main stream networks that target the whole community. The more people know the more they grow. Danny Glover should be the first target need a speaker. This disease isn't something new it used to be call bad blood back in the early 50's this is 2010 and the change must happen for all who believes in making the change. The young teenage having limbs missing and the other lady said the nurse will shut the door to avoid hearing her cries this has to stop. The nurse must learn along with these doctors must also learn and be educated. They are in the medical field. We must all speak out to the foundations and I like it P.S. when you said challenge the Sickle Cell Foundations to fight for the voices of people with sickle cell be heard and to find a cure of this disease or a cure for breaking the silence disease 'sickle cell'
Reply to comment


Jayla Henderson on Monday, October 4, 2010 9:09 PM
My words got kinda twisted but I hope ya understand where I coming from. Of the three beautiful ladies I hope none of them have it because they are beautiful but if one does my prayers are with you especially when go thru one of those horrible episodes. Peace and Christ be with you!
Reply to comment


lil Shadow on Thursday, October 7, 2010 11:37 AM
I am the young lady in the middle in the photo above. I was diagnosed with Sickle Cell at the age of 5 and it has been a battle since. I have had the same experience with nurses leaving me to cry and treating me as though I were a drug addict. I would get rushed to the hospital and sit in the waiting room for hours in severe pain until I was seen. Doctors/nurses don't understand what Sickle Cell is and what we go through on a day to day bases. From feeling lonely, to endless tears, to unbareable pain, to just wanting to give up sometimes. My prayers go out to each individual that has suffered and continues to suffer from this silent disease. To Rico Ray, I know that your battle is heavy but I want to encourage you to never be defeated. The Lord will place no weight on our shoulders that He knows we can't bare so through everything know that you are a strong young man and that you will come out on top. Much love to you!!! I will never let this silent disease get the best of me and I will always and forever continue to fight this battle with the Lord on my side. This disease is the most overlooked disease and I encourage everyone to let your voice be heard so we can fight for a cure.
Reply to comment


Erica Peoples on Thursday, October 7, 2010 7:53 PM
Oh my Goodness I would have never imagine any of the ladies have sickle cell. My prayers for you lil shadow.
Reply to comment


Taylor on Thursday, October 7, 2010 9:23 PM
Naw, you cant hav sc you too beautiful i will let more peep know about sc and site keep spirits up God is the answer he hears all
Reply to comment


peter on Wednesday, October 13, 2010 8:14 AM
Wow, I can't believe this disease. I read up on it... it is serious... more people need to know glad you put it out there because I didn't know and never heard of it. I am white and dating a black beautiful woman so if she has sickle cell or a trait will our children end up with this. The beautiful lady in the middle doesn't even look like she has it. It doesn't has a color on it like I read.
Reply to comment


pOp Squally P.S. on Wednesday, October 13, 2010 8:45 AM
The best way to know is to get tested earlier. Contact your local Sickle Cell Foundation for more details. I personally know the young beautiful lady in the middle. I admire her for many reasons; one allowing Radio 2000 Network.net to post her photo and because she doesn't let Sickle Cell Anemia rule her. She is such a brave young lady and brings tears to my eyes when I see her struggling through a sickle cell crisis. Again, I admire her for self motivation. She is self employed please visit her website to support her business. She makes customize jewelry and I do mean customize jewelry. My peeps asked me the other day, P.S. buy me some MREES Jewelry... Many peeps ask can I get a discount. She gives discounts just log on to www.mreesjewelry.com and see how she can customize your "One of a Kind" jewelry piece today. And I mean that. I support her customize jewelry business, well my paycheck does, I scream after the total but my peeps love the jewelry I buy for them from MREES JEWELRY. Again, I admire her determination to succeed, she wants to be a model and is preparing herself... This young lady is just awesome enough said. Believe for yourself go CHECK HER OUT... THE HOLIDAYS ARE COMING UP GET YOUR JEWELRY ORDER IN TODAY. REMEMBER THE JEWELRY IS CUSTOMIZE. We will continue to support sickle cell patients and get their voices heard on how sickle cell affect their lives and how do they manage. Oprah, Larry King Live and other network hosting shows OPEN YOUR DOORS and let Sickle Cell patients IN.
Reply to comment
 
Lois Sue Cummings on Wednesday, October 13, 2010 9:14 AM
I am in tears right now... Beautiful young lady... I have the trait and my mother recently passed because she had the disease. She would be proud to see this moment because she always talked about a day like this. I know my momma is smiling right now. Thanks for recognizing sickle cell and it isn't a silent disease. We make it silent by not gotting involved and supporting it. Sickle cell is a disease that hurts, very painful, stressful... the sickle cell foundations need to get more proactive for the sickle cell patients and schedule appearances on these shows. My mother started writing short stories and poems about her life with sickle cell called {THE CRIES OF SS} and the SS is Sally Sue her name. I will have it publish even though my mother was just writing as an outlet of her pain she endured. Follow your dreams young lady and don't ever give up. My mother was tired but she didn't give up she was 66 years old and lived her dreams. I will visit and support your website. My prayers are with you and thanks again, I enjoy this site. Looking forward to hearing more gospel songs.... Lois Sue writing in Memory of my mother Sally Sue! Miss you MOMMA SS you're the greatest...


Nichelle L. Jackson on Wednesday, October 13, 2010 10:22 PM
There have been many misconceptions passed down through the generations proving ignorance. I remember years ago i went to school with a boy who had it. Our teacher attempted to explain it to our 1st grade class. She said, it is heriditary, and the darker you are the more likely you are to have the trait in your family. Judging from the beauty in the middle of the picture, that is another incorrect assuption. That not only you have to be black , but darker complexion. What ignorance!
Reply to comment


Ms. Shelby on Friday, October 15, 2010 6:53 PM
The silence disease is silence because the media will not promote it. We live in an unfair country.
Reply to comment


Tianji I9200 on Thursday, September 20, 2012 9:13 PM
Hey! I just would like to give an enormous thumbs up for the nice info you've gotten here on this post. I will likely be coming again to your weblog for extra soon.
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creativebioscience.com on Friday, November 2, 2012 3:36 AM
Watch for symptoms of anemia. If you are constantly tired, bruise easily or suffer from dizziness you might be anemic. This condition can contribute to kidney disease if it is not properly treated or becomes a chronic problem. Thanks.


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creativebioscience.com on Friday, November 2, 2012 6:12 AM
Some excellent choices for meals are: honey, frozen yogurt, cheesecake, pastries, patisseries, flan, candy bars, pancakes, bacon and ice cream sundaes. Thanks a lot.
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Lisa Rae on Saturday, November 24, 2012 9:52 AM
Unfortunated Gucci Galaxy you won't refer this website, this info is a good source and I have Sickle Cell ... I must thank this website it's the only site I have been on that consider recognizing Sickle Cell.
Reply to comment


Lisa Rae on Saturday, November 24, 2012 9:57 AM
The only way any silence is broken if people like you and I continue to support by spreading the word.
Reply to comment


ego ce4 cigarette on Monday, December 10, 2012 4:27 AM
PoP Squally Sickle Cell, Why is this A Silent Disease among other diseases... pOp Squally P.S.: Posted on Monday, October 04, 2010 4:26 PM WHICH ONES OF THESE THREE BEAUTIFUL LADIES DO YOU THINK HAVE SICKLE CELL ANEMIA.... L1 M2 R3 ~ HELP FIND A CURE FOR SICKLE CELL ANEMIA SUPPORT YOUR LOCAL SICKLE CELL FOUNDATION TODAY! Sickle Cell PSA :: Face the Future :: PSA 3 Categories: Oct 2010, NOV 2012 Trackback Link -------------------------------------------------------------------------------- 34 Comments to Sickle Cell, Why is this A Silent Disease among other diseases... : Comments RSS karen w white on Monday, October 04, 2010 4:30 PM I believe it is silent because advertiser will not push a disease that they believe only affects blacks... It is really sad they don't know it affects everybody.... My choice of the three is r3 Reply to comment ayoola olajide on Friday, October 08, 2010 10:38 AM For more news stories, articles, help resources, read the world's first dedicated sickle cell newsmagazine. Madison E. Row on Monday, October 04, 2010 4:37 PM Great website I must share... need more music on jazz... anyway... I agree... everything in our society that is heard must be supported by ads... This is cancer month... you have the whole world supporting cancer and don't get me wrong because I am a cancer survival as well but our society is selfish when it comes to helping our black people in america... this disease is global... aids has more preference over sickle cell... It will continue to be Silent until we all pull together and get the Gates family to market Sickle Cell Anemia since they are giving away billions of dollars. Sickle Cell Foundation call on the Bill Gates family to get heard... They don't have the even leave the country to help in the U.S.A. Reply to comment Freedom Rings on Monday, October 04, 2010 4:45 PM I normally do not write on blogs... but I have sickle cell anemia and I just want to thank your company for recognizing Sickle Cell Anemia. I am suffering and in so much pain and it saddens me that it is a Silent Disease. Our voices are never heard and who really hears our cries... I would cry for hours and the nurses just shut my door. I would love to go on Larry King Live and Speak on Sickle Cell... or on 60 Minutes because we make a difference in this world Let's Break the Silence!!! Wouldn't it be nice to see "Sickle Cell the Un-Silent Disease"... Reply to comment Rico Ray Collins on Monday, October 04, 2010 5:01 PM Man, I love your site. I am 17 years old and I spend most of my days in the hospital my mom crying my dad pacing the floors. When I am up an able I surf the web. I found your site the other day. It is good seeing a radio station talk about or even considering Sickle Cell a topic... I thought Only my peeps and doctors were the only ones knew about this what I call blood disorder. I would say that I am crying to see this but that would make me be a little boy... I am a young teen and on my spare time I watch basketball and hope to get out the children's hospital... I lost my limbs because it was in my bone marrow... All I wanted to do was to play bal... So I play madden bal... For the real playas you never kno just how bless you are don't take it for granted life is to short and I support ya 100%... and by the way Thanks for thinking of Sickle Cell it made my day... Rico Ray Reply to comment hcg1234.com on Monday, October 29, 2012 1:15 PM Let the patient's own defense system treat the cancer with immunotherapy. Immunotherapy works by boosting the patient's immune system and/or giving the patient manufactured versions of normal parts of his immune system. The American Cancer Society projects that immunotherapy will spur many future advances in the fight against cancer. Thanks a lot. pOp Squally on Monday, October 04, 2010 5:42 PM Hey Rico Ray hang in there man... and you will be out the hospital soon... I love Madden Ball as well and my jump shot is like DJ ok it sucks... Have much love for our BlogTown Upside Down viewers and writers... Keep letting us know how we are doing and what you want us to share from the r2 Family. We are actively involved in the communities and will be supporting Golden Heart Foundation this Oct 15, 2010 at Westwood Community College an Aviation Awareness Day with Inner City Students. his is what makes Radio 2000 Network.net different. Hearing from people like Rico Ray. Real life stories. Keep in those books young teen and prepare yourself for college. You are right you are not a little boy. Sometimes it is still good to cry. I cry when I look at my paycheck... Just kidding... love you Boss... on the real... Make your parents proud cause momma and daddy is by your side... Freedom Rings may be right to get Sickle Cell heard on Larry King Live and 60 Minutes... I challenge the Sickle Cell Foundation to stand for the Sickle Cell patients and get there voices heard on Larry King Live and 60 Minutes. This is serious!!! Don't Stop until the Silence is Un-Silent... I like this... Let others know about the World Famous Internet Radio Broadcast Site the Home Choice of Listening right at your fingertips. I said it because I believe that... That wasn't a joke. My peep trying to tell me what to write... You, better go get your own blog... I'm callin you out girl... Keep it posted right here www.radio2000network.net cause we care about You. Reply to comment Rico Ray Collins on Monday, October 04, 2010 5:44 PM Thanks pOp Squally weird name but coo... Reply to comment Ronald on Monday, October 04, 2010 5:46 PM I don't believe none of those beautiful ladies have Sickle Cell Anemia... Are they married. Reply to comment karen w white on Monday, October 04, 2010 5:48 PM Mr. pop squally I like your comment the sickle cell foundation needs to push for the patients and get heard on Oprah... Reply to comment Sheila Woods on Monday, October 04, 2010 5:57 PM Hey, everybody... I was visiting the site just got home to view the home choice of listening got to get more gospel songs I love the new look you know I am going to tell ya... it is good hearing pOp Squally P.S. I love your comments like always... I don't believe those beautiful ladies have Sickle Cell the are too cute lady divas.... Also my comment is like most no advertising dollars supporting Sickle Cell. Reply to comment Jayla Hendeson on Monday, October 04, 2010 9:03 PM Thanks for bloggin P.S. miss you. This is a very interesting question and glad you asked. It is silent because we don't address these issues to the public and educate them of Sickle Cell. I only here it encircled in the black communities instead of the whole communities. The Sickle Cell Foundation need to put funds together and advertise on main stream networks that target the whole community. The more people know the more they grow. Danny Glover should be the first target need a speaker. This disease isn't something new it used to be call bad blood back in the early 50's this is 2010 and the change must happen for all who believes in making the change. The young teenage having limbs missing and the other lady said the nurse will shut the door to avoid hearing her cries this has to stop. The nurse must learn along with these doctors must also learn and be educated. They are in the medical field. We must all speak out to the foundations and I like it P.S. when you said challenge the Sickle Cell Foundations to fight for the voices of people with sickle cell be heard and to find a cure of this disease or a cure for breaking the silence disease 'sickle cell' Reply to comment Jayla Henderson on Monday, October 04, 2010 9:09 PM My words got kinda twisted but I hope ya understand where I coming from. Of the three beautiful ladies I hope none of them have it because they are beautiful but if one does my prayers are with you especially when go thru one of those horrible episodes. Peace and Christ be with you! Reply to comment lil Shadow on Thursday, October 07, 2010 11:37 AM I am the young lady in the middle in the photo above. I was diagnosed with Sickle Cell at the age of 5 and it has been a battle since. I have had the same experience with nurses leaving me to cry and treating me as though I were a drug addict. I would get rushed to the hospital and sit in the waiting room for hours in severe pain until I was seen. Doctors/nurses don't understand what Sickle Cell is and what we go through on a day to day bases. From feeling lonely, to endless tears, to unbareable pain, to just wanting to give up sometimes. My prayers go out to each individual that has suffered and continues to suffer from this silent disease. To Rico Ray, I know that your battle is heavy but I want to encourage you to never be defeated. The Lord will place no weight on our shoulders that He knows we can't bare so through everything know that you are a strong young man and that you will come out on top. Much love to you!!! I will never let this silent disease get the best of me and I will always and forever continue to fight this battle with the Lord on my side. This disease is the most overlooked disease and I encourage everyone to let your voice be heard so we can fight for a cure. Reply to comment Erica Peoples on Thursday, October 07, 2010 7:53 PM Oh my Goodness I would have never imagine any of the ladies have sickle cell. My prayers for you lil shadow. Reply to comment Taylor on Thursday, October 07, 2010 9:23 PM Naw, you cant hav sc you too beautiful i will let more peep know about sc and site keep spirits up God is the answer he hears all Reply to comment peter on Wednesday, October 13, 2010 8:14 AM Wow, I can't believe this disease. I read up on it... it is serious... more people need to know glad you put it out there because I didn't know and never heard of it. I am white and dating a black beautiful woman so if she has sickle cell or a trait will our children end up with this. The beautiful lady in the middle doesn't even look like she has it. It doesn't has a color on it like I read. Reply to comment pOp Squally P.S. on Wednesday, October 13, 2010 8:45 AM The best way to know is to get tested earlier. Contact your local Sickle Cell Foundation for more details. I personally know the young beautiful lady in the middle. I admire her for many reasons; one allowing Radio 2000 Network.net to post her photo and because she doesn't let Sickle Cell Anemia rule her. She is such a brave young lady and brings tears to my eyes when I see her struggling through a sickle cell crisis. Again, I admire her for self motivation. She is self employed please visit her website to support her business. She makes customize jewelry and I do mean customize jewelry. My peeps asked me the other day, P.S. buy me some MREES Jewelry... Many peeps ask can I get a discount. She gives discounts just log on to www.mreesjewelry.com and see how she can customize your "One of a Kind" jewelry piece today. And I mean that. I support her customize jewelry business, well my paycheck does, I scream after the total but my peeps love the jewelry I buy for them from MREES JEWELRY. Again, I admire her determination to succeed, she wants to be a model and is preparing herself... This young lady is just awesome enough said. Believe for yourself go CHECK HER OUT... THE HOLIDAYS ARE COMING UP GET YOUR JEWELRY ORDER IN TODAY. REMEMBER THE JEWELRY IS CUSTOMIZE. We will continue to support sickle cell patients and get their voices heard on how sickle cell affect their lives and how do they manage. Oprah, Larry King Live and other network hosting shows OPEN YOUR DOORS and let Sickle Cell patients IN. Reply to comment Lois Sue Cummings on Wednesday, October 13, 2010 9:14 AM I am in tears right now... Beautiful young lady... I have the trait and my mother recently passed because she had the disease. She would be proud to see this moment because she always talked about a day like this. I know my momma is smiling right now. Thanks for recognizing sickle cell and it isn't a silent disease. We make it silent by not gotting involved and supporting it. Sickle cell is a disease that hurts, very painful, stressful... the sickle cell foundations need to get more proactive for the sickle cell patients and schedule appearances on these shows. My mother started writing short stories and poems about her life with sickle cell called {THE CRIES OF SS} and the SS is Sally Sue her name. I will have it publish even though my mother was just writing as an outlet of her pain she endured. Follow your dreams young lady and don't ever give up. My mother was tired but she didn't give up she was 66 years old and lived her dreams. I will visit and support your website. My prayers are with you and thanks again, I enjoy this site. Looking forward to hearing more gospel songs.... Lois Sue writing in Memory of my mother Sally Sue! Miss you MOMMA SS you're the greatest... Nichelle L. Jackson on Wednesday, October 13, 2010 10:22 PM There have been many misconceptions passed down through the generations proving ignorance. I remember years ago i went to school with a boy who had it. Our teacher attempted to explain it to our 1st grade class. She said, it is heriditary, and the darker you are the more likely you are to have the trait in your family. Judging from the beauty in the middle of the picture, that is another incorrect assuption. That not only you have to be black , but darker complexion. What ignorance! Reply to comment Ms. Shelby on Friday, October 15, 2010 6:53 PM The silence disease is silence because the media will not promote it. We live in an unfair country. Reply to comment Tianji I9200 on Thursday, September 20, 2012 9:13 PM Hey! I just would like to give an enormous thumbs up for the nice info you've gotten here on this post. I will likely be coming again to your weblog for extra soon. Reply to comment creativebioscience.com on Friday, November 02, 2012 3:36 AM Watch for symptoms of anemia. If you are constantly tired, bruise easily or suffer from dizziness you might be anemic. 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I must thank this website it's the only site I have been on that consider recognizing Sickle Cell. Reply to comment Lisa Rae on Saturday, November 24, 2012 9:57 AM The only way any silence is broken if people like you and I continue to support by spreading the word.
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